Updates on Evan

Good while it lasted.

Posted by: Myra
Date: November 30th, 2008

After a great few days at home, Sunday night finds us back at St. John’s Hospital. Evan is running a fever, his neutrophils are zero and his hemoglobin / platelets are low. Lucky for us, Crazy Amy was standing at the ready when we were admitted at 7 p.m. She helped perk up Evan’s spirits – he was devastated to have to come back to the hospital again so soon.

It’s the 10th day after Evan’s last chemo treatment began, so it’s not unexpected that his counts are down. We had just hoped he wouldn’t run a fever this time. We’re hopeful the blood culture will come back negative for infection. Since his hemoglobin is 7.4, he’s receiving a unit of blood tonight.

Week (aka cycle) 18 of the treatment protocol is a break. Week #19 is evaluation. After Evan’s counts come back up they will schedule an MRI.

Dear Lord, we need to deliver some good news to this little boy. He needs to see what he’s going through is working to make him better.

We appreciate your continued positive vibes and prayers.

 

From Thy Bounty.

Posted by: Myra
Date: November 26th, 2008

Thanksgiving takes on a new meaning for our family this year. We would like to share some of the things we are thankful for…

…a fast diagnosis. Although it took several weeks to find Evan’s tumor, it took less than 24 hours to find out it was Rhabdo. Allowing treatment to begin almost immediately. We are so blessed to be able to receive treatment here at home allowing us to have the support of our family and friends.

…wristband wearers. Once or twice a day you glance down at your wrist and say a silent prayer. Or, someone asks you about the wristband your wearing and you tell Evan’s story and one more person thinks about him.

…a community of people brought together. It would have been easy to let anger and despair take over, but those emotions quickly dissipated as our family, friends, and even strangers, wrapped us in a cocoon of compassion, hope and love.

…the kindness and generosity shown to our family. From day one, people have reached out to us so we would know we are not alone in this fight. Your words of support, cards, gifts, donations, hugs, smiles, and prayers have touched our hearts deeply.

…our co-workers, who have unselfishly allowed us the time we need to be with our son.

…our faith in God. Without our faith it would be impossible to witness the suffering our son has had to endure. The support of the St. Agnes community has brought us great comfort. Many denominations from across town to across the world have generously added Evan to their prayer groups. We are also thankful for Stan Z. and the St. Brendan Church in Ormond Beach, FL for their continued mass intentions. When Evan is well, we plan to come celebrate Mass with your parishioners.

…you. You may be visiting this site for the first time or the hundredth, no matter. We are thankful you took a few minutes out of your day to read and care about Evan.

May God bless you and your family as you gather to celebrate Thanksgiving, and always.

With love and gratitude,
The Hoffmans

 

Home is where the Hershey is.

Posted by: Myra
Date: November 25th, 2008

We were released from the hospital this afternoon. Evan’s tired, but feeling okay. He asked if we could stop and pick up a new video game on the way home. Since he just endured five days of chemotherapy and sleep deprivation, I was not about to deny his request. He said, “This isn’t an early Christmas present either.” Attaboy, Evan! I like your spirit.

 

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