Updates on Evan

Homeward bound!

Posted by: Myra
Date: September 30th, 2008

We are heading home this afternoon! Evan’s counts continue to look great and his mouth sores are much better today. He’s been sipping some hot tea with honey and that seems to soothe his mouth.

He’ll have the next four days to try to eat on his own. We are scheduled to come back on Friday for his next 5-day round of chemo. (Yes, so soon.) If he’s not eating sufficiently by Friday then they will start the TPN nutrition again for 10-14 days. From there we will be looking at more permanent solution such as surgery to insert a g-tube. Even with a g-tube, Evan will still be able to eat by mouth anytime he wants.

Thank you for your continued prayers and supportive messages. They really do help us get through each day.

With love and hope,
Myra, Jeff and Evan

 

Rainy days and Mondays.

Posted by: Myra
Date: September 29th, 2008

Evan’s blood counts have finally started to come back up. Thank you, Lord. He still has a considerable amount of mouth pain that we’re hoping will diminish over the next day or so. He’s still receiving fluids and pain meds as needed. The trick to getting out of here is Evan has to start drinking something. As his mouth pain intensified he quit wanting to drink anything. However, he has choked down the Megace (appetite stimulant) everyday but Saturday.

The doctors are adamant that we approach this week with a ‘sink or swim’ attitude as far as Evan’s nutrition goes. Everyday for the past two weeks we’ve asked “Are you sure we shouldn’t re-start the TPN or consider something more permanent for nutrition. “ Their response is - if we are ever going to get him re-started on eating we need to do it this week while his counts are good, he’s not having Chemo, no fever, etc.

So, we’re calling on all of you – family, friends, co-workers, St. Agnes community, St. Brendan parishioners, CyberScotts, friends of friends, CTK, BSS, White Sox fans…well, you get the point. We simply need all of you to pray extra hard for the return of Evan’s appetite this week.

Thank you, and may God bless all of you too.

The Hoffmans

 

Weekend update.

Posted by: Myra
Date: September 27th, 2008

Hello all,
Yes, we are still on the 5th floor at St. John’s. Although we did switch rooms a couple of days ago. (It doesn’t take long to learn the lay of the land and know where the quiet rooms are.) Evan’s counts remain at zero. They seem to be taking longer this time to come back up. His platelets are especially low, so he’ll receive a platelet transfusion today. Because of the low counts his gums hurt and he now has painful sores on the sides of his tongue. He’s receiving oxycodone and morphine to help with the pain, and using a special ‘magic mouthwash’ to help numb his mouth.

One bright spot, Evan has been sipping some 7-UP and says it even tastes good.

Jeff and I continue to take turns spending the night. Believe it or not, it can be exhausting staying at the hospital. There is an endless parade of people in the room throughout the day and night…RNs, LPNs, Techs, nursing students (hello Brittany), medical students, residents, doctors, lay ministers, food service, cleaning staff, etc. The medical personnel all asking poor Evan the same questions over and over. This is certainly no place to be if you need some rest.

 

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