Updates on Evan

All quiet on the homefront.

Posted by: Myra
Date: July 27th, 2009

The enormity of what we’ve all been through the past 13 months has really seemed to hit home lately. I think back to this time last year and recall the feeling of hopelessness, the utter despair and fear of the unknown. I suppose the fear of the unknown will never quite go away, but we certainly have a renewed sense of hopefulness as we near the end of Evan’s treatments.

This past Saturday night we actually went out to dinner and then to a movie (Harry Potter) like a “normal” family. None of us will ever take those simple pleasures for granted again.

Evan had a CBC done today to check his counts. His hemoglobin is a bit low, but all the other counts looked good. We’ll go back to the cancer clinic a week from now and Evan will receive five days of Irinotecan.

As always, when you don’t hear anything from us you can assume all is good. Thank you for continuing to take this journey with us.


Chemo week #48 today.

Posted by: Myra
Date: July 20th, 2009

Evan went in for his shot of Vincristine this afternoon. He had his CBC done and his counts all look pretty good. No GCSF injections necessary this week, yeah! Except for frequent trips to the bathroom, he's been feeling good.

We are down to the final TWO chemo treatments!! Can it really be true? Next week (considered #49) is a break. Chemo week #50 starts Monday, August 3, and we will repeat the 5 days of outpatient Irinotecan treatments like he had last week. Monday, August 10 will be chemo #51, an injection of Vincristine and the very LAST treatment. Then a couple of weeks off before the final MRI evaluation. I know I'm getting ahead of myself, but we are SO ready to be finished.

I know a lot of you continue to wear your prayer wristbands and I can't tell you how much it means to us. I've heard some are a nice shade of pink and even white by now, no worries, your prayers are working! May God bless you for your sticktoitness.



Posted by: Myra
Date: July 17th, 2009

Last day for chemo cycle #47. Evan has felt pretty good the last few days. He actually walked around the grocery store with me yesterday, something he hasn't done for a year. He didn't have the stamina to do so before. It's little things like that we take for granted, when it comes to our health.

Monday will be chemo week #48, a shot of Vincristine. Now we just have to hope he sneaks under the Nadir radar and bypasses a fever this time.

Thanks for all the great messages!


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