Messages for Evan

Prayers

Posted by: Amy Goodner
Date: February 28th, 2010

We're praying so hard for healing. There's got to be some options with promising results!

Prayers and prayers and prayers

Posted by: Tammie Klein
Date: February 28th, 2010

Hi Guys,
As I'm reading your last updates, I remember back (all too well) to when Michael was a baby and was so sick. I remember praying to God and not knowing exactly what to ask for, feeling afraid to "talk bossy" to God. So I remember praying to "Please help us to help Michael." So now I'm praying for Evan, please help us to help Evan. Love to all of you,
Tammie, Pat, Andrew, and Michael Kelley

St Louis

Posted by: The Curry's
Date: February 28th, 2010

Hoffmans:

I'm praying that the meds keep the pain at bay and that St. Louis will be a viable option.

Thanks for the update Myra

Love and prayers for all of you.

The Curry's

Consider a clinical trial?

Posted by: Linda Kelly
Date: February 28th, 2010

I am so truly sorry to hear this news. Because Sean has relapsed rhabdomyosarcoma I have researched clinical trials which I have discussed with his oncologist. I have read that GDC-0449 has had great success with Basal carcinoma and is in clinical trial for rhadomyosarcoma in adult patients. Currently there are trials for GDC-0449 and children with brain tumors. There is currently a clinical trial CT009688981 for refractory solid tumors in adults. Maybe they would consider "compassionate use" because Evan is under 18. Maybe you could discuss this with Evan's oncologist. I think there is a chance that this could help. I am truly sorry, I am only trying to help. I will continue to pray for Evan and your family.

Hi Evan

Posted by: Evelyn George
Date: February 28th, 2010

Just to let you know that I am still praying for good news for you and that the pain you are experiencing will lesson soon. You have a strong spirit and are an inspiration to us all.

God Bless,
Evey G.